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About ALS Canada
A charitable organization that lives its values of accountability, collaboration, compassion, integrity, resiliency and respect, ALS Canada works with the ALS community to improve the lives of people affected by amyotrophic lateral sclerosis through support, advocacy and investment in research for a future without ALS. Fully funded by donors, we were fortunate to benefit from the generosity of Canadians during the Ice Bucket Challenge of 2014, and are now focused on implementing our 2018 to 2023 strategic plan in support of the following long-term impacts: people affected by ALS receive the best possible standard of care; more treatments are available to improve quality of life and extend lifespan; and people are empowered to make informed decisions about ALS.
Our world is challenging. The people we serve are dealing with a devastating illness. But in the midst of it, their resiliency and spirit is remarkable and moving. You will be touched by the community and will find a way to naturally and effectively engage.
Reporting to the Manager, Research and CALS, the Research Coordinator will support the Research team to engage with stakeholders in the ALS community including clients, families and researchers, ALS clinics, ALS Health Care Providers, and representatives from the ALS Societies across Canada regarding Research updates within the ALS Community. They will be responsible for the logical execution of the Research Forum, National Granting Program and travel and meeting logistics for the Research team.
- Collect and track all national and international papers written on ALS
- Monitor and respond to the research phone line and email inbox as required
- Execute all logistics surrounding ALS Canada’s annual 4-day Research Forum; including but not limited to: coordination of catering, hotel room booking, event space, bus trips and vender bookings and also event day set up/ tear down
- Coordinate the invitations for the event and collect RSVP responses, tracking any dietary restrictions or additional request
- Main contact for all invitees for the conference- send out agenda and save the date prior to, as well as wrap up and action items
- Source vendors and order gifts/ swag for all attendees of training
- Coordinate supply packing leading up to and after events: sorting and dividing supplies, lifting and loading products
- Main contact with event space and venders during the event; supports event day trouble shooting as required
- Track costs and complete expense claims as required
- Attend all four days of the research forum to act as an ambassador on behalf of ALS Canada
National Research Granting Program:
- Collect and track all grant applications
- Coordinate phone call teleconferences for selection committees (including providing IT support during the calls, sending out the agenda and meeting materials and logistics)
- Coordinate all logistics surrounding in person grant selection meetings: including providing panel with travel information, day of logistics, hotel bookings, meeting materials and day of logistics
- Collect and code all related invoices and work with Finance team to complete expense claims and distribute grants
- Maintain grant distribution schedule
- Act as the primary contact between grant applicants and ALS Canada, answer inquires regarding grant application process as required
- Attend Scientific and Medical Advisory Council meetings, take and distributes minutes and meeting material
- Book travel for VP, Research and Manager, Research and CALS including air travel, hotel booking etc.
- Complete and code expense claims as required
- Attend ALS Canada events as an ambassador of the organization
- Other duties as assigned
- Successful completion of a bachelor’s degree in science
- College degree or equivalent post-secondary education - diploma in office administration, event coordination an asset
- Minimum of 2 years of previous work experience in office administration, event coordinator or a related field required
- Previous experience working at a not for profit or health charity or working with individuals with a terminal disease an asset
- Previous focus on ALS, an understanding of the disease and the state of the field an asset
- Exceptional organization, verbal and written communication, and interpersonal skills are essential
- Detail oriented and good editing skills
- Inherent demonstration of ALS Canada core values: accountability, collaboration, compassion, integrity, resiliency, respect
- Must be able to take initiative and respond effectively to directed tasks
- Ability to work some evenings and weekends and possibly some travel (nationally)
- Strong computing skills in basic word processing, spreadsheet and presentation software
- Quick learner
- Proficiency with Adobe Acrobat, Photoshop, and Illustrator preferred
- Driver’s licence an asset
- French/English bilingualism an asset
Submit a cover letter and resume in pdf format to jobs@ALS.ca. Please be sure to indicate the job title in the email subject. Applications will be reviewed on an ongoing basis until the position is filled.
ALS Canada would like to thank all applicants for their interest; however only those selected for an interview will be contacted.